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Resources for parents

Canadian Down Syndrome Society
www.cdss.ca
1 800 883 5608
More information about Down syndrome with links to local parent support groups.
S.O.F.T. Support Organization for Trisomy 18, 13 and Related Disorders
www.trisomy.org
1 800 716 7638 or 585 594 4621
More information about trisomy 18
Spina Bifida and Hydrocephalus Association of Canada
www.sbhac.ca
1 800 565 9488
More information about spina bifida
The Genetics Home Reference – Your Guide to Understanding Genetic Conditions
www.ghr.nlm.nih.gov
An excellent site to learn more about genetics including Down syndrome, trisomy 18 and more.
Motherisk
www.motherisk.org
416 813 6780 or 1 877 327 4636
Information service for women who have been exposed to environmental agents, drugs and alcohold during pregnancy.
The Genetics Education Project
www.mtsinai.on.ca/FamMedGen
March of Dimes
www.marchofdimes.com
Excellent source of information about pregnancy including common prenatal tests, complications during pregnancy, things to avoid during pregnancy, birth defects, etc.