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Resources for Parents

The Genetics Home Reference – Your Guide to Understanding Genetic Conditions
An excellent site to learn more about genetics including Down syndrome, trisomy 18 and more.
March of Dimes
Excellent source of information about pregnancy including common prenatal tests, complications during pregnancy, things to avoid during pregnancy, birth defects, etc.
416 813 6780 or 1 877 327 4636
Information service for women who have been exposed to environmental agents, drugs and alcohold during pregnancy.
Canadian Down Syndrome Society
1 800 883 5608
More information about Down syndrome with links to local parent support groups.
S.O.F.T. Support Organization for Trisomy 18, 13 and Related Disorders
1 800 716 7638 or 585 594 4621
More information about trisomy 18
Spina Bifida and Hydrocephalus Association of Canada
1 800 565 9488
More information about spina bifida