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| Encounter |
ART1060
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ART Admission to NICU
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CARTRPLUS Cycle (ART)
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Data Definition:
Indicate newborn’s transfer to the NICU
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D0021
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Generic Comment
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Antenatal General (AG), Birth Child (BC), Labour & Birth Mother (LBM), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC), Postpartum Mother (PPM)
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BORN collects this variable but due to personal health information (PHI) or sensitivity it is not available for data request.
Data Definition:
Comment to capture details not identified in other data elements.
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D0024-1
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Newborn Congenital Anomalies Identified
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Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
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Data Definition:
Indication whether there were suspected or confirmed newborn congenital anomalies
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D0024ICD
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Newborn Congenital Anomalies Suspected
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Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
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Data Definition:
Identify all suspected congenital anomalies. If a suspected congenital anomaly is later confirmed as not present, it should remain as suspected. Then None or any other confirmed anomalies should be entered in Congenital Anomalies Confirmed.
Pick List Value:
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Absent cavum septum pellucidum (CSP)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Absent cerebellar vermis
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Acrania or Anencephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Arachnoid cyst(s)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Arnold Chiari Malformation
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Aqueductal stenosis
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Corpus Callosum - Agenesis (ACC)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Corpus Callosum - Hypoplasia
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Dandy walker malformation/ variant (DWM)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Encephalocele
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Enlarged cisterna magna
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Holoprosencephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Hydrocephalus
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Hypotonia, unspecified
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Lissencephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Macrocephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Microcephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Polymicrogyria
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Posterior fossa cyst
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Sacral agenesis
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Sacrococcygeal teratoma (SCT)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Seizures
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Spina Bifida with hydrocephalus
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Spina Bifida without hydrocephalus
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Ventriculomegaly - Mild-Moderate (11-14.9 mm)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Ventriculomegaly - Severe (>15 mm)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Other - malformations of the nervous system
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Other - malformations of the brain
Eye Anomalies \ Anophthalmos
Eye Anomalies \ Congenital cataract
Eye Anomalies \ Congenital glaucoma
Eye Anomalies \ Microphthalmos
Eye Anomalies \ Other - malformations of eye
Ear, Face and Neck Anomalies \ Choanal atresia
Ear, Face and Neck Anomalies \ Ears - Anotia
Ear, Face and Neck Anomalies \ Ears - Microtia
Ear, Face and Neck Anomalies \ Macroglossia
Ear, Face and Neck Anomalies \ Micrognathia
Ear, Face and Neck Anomalies \ Nose - Absent
Ear, Face and Neck Anomalies \ Nose - Hypoplastic
Ear, Face and Neck Anomalies \ Retrognathia
Ear, Face and Neck Anomalies \ Other - malformations of ear
Ear, Face and Neck Anomalies \ Other - malformations of the face and neck
Oro-facial Clefts \ Cleft lip
Oro-facial Clefts \ Cleft lip with cleft palate
Oro-facial Clefts \ Cleft palate
Oro-facial Clefts \ Pierre Robin Sequence
Thorax Anomalies \ Bronchopulmonary sequestration (BPS)
Thorax Anomalies \ Congenital high airway obstruction (CHAOS)
Thorax Anomalies \ Cystic adenomatous malformation of lung (CCAM)
Thorax Anomalies \ Diaphragmatic hernia (CDH)
Thorax Anomalies \ Other - congenital malformations of lung
Thorax Anomalies \ Other - malformations of the diaphragm
Cardiovascular Anomalies \ Aortic arch - Double
Cardiovascular Anomalies \ Aortic arch - Interrupted
Cardiovascular Anomalies \ Aortic arch - Right
Cardiovascular Anomalies \ Aortic atresia/Hypoplastic aortic arch
Cardiovascular Anomalies \ Aortic valve stenosis
Cardiovascular Anomalies \ Arrhythmia
Cardiovascular Anomalies \ Atrial isomerism (heterotaxy) - Left
Cardiovascular Anomalies \ Atrial isomerism (heterotaxy) - Right
Cardiovascular Anomalies \ Atrial septal defect (ASD)
Cardiovascular Anomalies \ Atrioventricular septal defect (AVSD)
Cardiovascular Anomalies \ Cardiomegaly
Cardiovascular Anomalies \ Coarctation of aorta
Cardiovascular Anomalies \ Congenital heart block (complete and incomplete)
Cardiovascular Anomalies \ Dextrocardia
Cardiovascular Anomalies \ Discordant atrioventricular connection
Cardiovascular Anomalies \ Double inlet ventricle (Single ventricle)
Cardiovascular Anomalies \ Double outlet right ventricle (DORV)
Cardiovascular Anomalies \ Ebstein anomaly
Cardiovascular Anomalies \ Hypoplastic left heart (HLHS)
Cardiovascular Anomalies \ Hypoplastic right heart (HRHS)
Cardiovascular Anomalies \ Mitral valve atresia
Cardiovascular Anomalies \ Mitral valve insufficiency
Cardiovascular Anomalies \ Mitral valve stenosis
Cardiovascular Anomalies \ Patent ductus arteriosus (PDA) - >37 weeks
Cardiovascular Anomalies \ Patent/Persistent foramen ovale (PFO)/Premature closure of atrial septum
Cardiovascular Anomalies \ Pericardial effusion
Cardiovascular Anomalies \ Pulmonary valve atresia
Cardiovascular Anomalies \ Pulmonary valve dysplasia
Cardiovascular Anomalies \ Pulmonary valve stenosis
Cardiovascular Anomalies \ Situs inversus (cardiac and abdominal)
Cardiovascular Anomalies \ Tetralogy of Fallot (TOF)
Cardiovascular Anomalies \ Total anomalous pulmonary venous connection (TAPVC)/Partial anomalous pulmonary venous connection (PAPVC)
Cardiovascular Anomalies \ Transposition of great vessels (TGV)
Cardiovascular Anomalies \ Tricuspid atresia/stenosis
Cardiovascular Anomalies \ Tricuspid regurgitation
Cardiovascular Anomalies \ Tricuspid valve dysplasia
Cardiovascular Anomalies \ Truncus arteriosus (common arterial truncus)
Cardiovascular Anomalies \ Vascular ring
Cardiovascular Anomalies \ Vena cava, bilateral superior (SVC)
Cardiovascular Anomalies \ Vena cava, interrupted inferior (IVC)
Cardiovascular Anomalies \ Vena cava, persistent left superior (SVC)
Cardiovascular Anomalies \ Ventricular disproportion (RV/LV discrepancy)
Cardiovascular Anomalies \ Ventricular septal defect (VSD)
Cardiovascular Anomalies \ Other cardiac malformations
Abdominal Wall Defects \ Gastroschisis
Abdominal Wall Defects \ Omphalocele (exomphalos)
Abdominal Wall Defects \ Other - congenital malformations of abdominal wall
Gastrointestinal & Abdominal Anomalies \ Abnormal stomach (including small/absent stomach)
Gastrointestinal & Abdominal Anomalies \ Biliary atresia (atresia of bile ducts)
Gastrointestinal & Abdominal Anomalies \ Bowel obstruction
Gastrointestinal & Abdominal Anomalies \ Duodenal atresia/stenosis
Gastrointestinal & Abdominal Anomalies \ Esophageal atresia (without fistula)
Gastrointestinal & Abdominal Anomalies \ Esophageal atresia with tracheo-esophageal fistula (TEF)
Gastrointestinal & Abdominal Anomalies \ Tracheoesophageal fistula (TEF) without esophageal atresia
Gastrointestinal & Abdominal Anomalies \ Hirschsprung disease
Gastrointestinal & Abdominal Anomalies \ Imperforate anus (congenital absence, atresia, stenosis of anus)
Gastrointestinal & Abdominal Anomalies \ Large intestine atresia/stenosis
Gastrointestinal & Abdominal Anomalies \ Pyloric stenosis
Gastrointestinal & Abdominal Anomalies \ Rectal atresia/stenosis with/without fistula
Gastrointestinal & Abdominal Anomalies \ Small bowel, abnormal
Gastrointestinal & Abdominal Anomalies \ Small intestine atresia/stenosis (excluding duodenum)
Gastrointestinal & Abdominal Anomalies \ Umbilical hernia
Gastrointestinal & Abdominal Anomalies \ Other - malformations of gastrointestinal system
Urinary Anomalies \ Bladder/cloacal exstrophy
Urinary Anomalies \ Congenital hydronephrosis
Urinary Anomalies \ Cystic kidneys - other
Urinary Anomalies \ Duplex kidney/collecting system
Urinary Anomalies \ Echogenic kidney(s)
Urinary Anomalies \ Ectopic/pelvic kidney
Urinary Anomalies \ Lower urinary tract obstruction
Urinary Anomalies \ Megacystis
Urinary Anomalies \ Megaureter
Urinary Anomalies \ Multicystic dysplastic kidney(s)
Urinary Anomalies \ Polycystic kidney, autosomal dominant
Urinary Anomalies \ Polycystic kidney, autosomal recessive
Urinary Anomalies \ Posterior urethral valves (PUV)
Urinary Anomalies \ Prune belly
Urinary Anomalies \ Renal agenesis - bilateral
Urinary Anomalies \ Renal agenesis - unilateral
Urinary Anomalies \ Renal cyst
Urinary Anomalies \ Renal Dysplasia
Urinary Anomalies \ Ureterocoele
Urinary Anomalies \ Other - malformations of the urinary system
Genital Anomalies \ Ambiguous genitalia/Indeterminate sex
Genital Anomalies \ Cryptorchidism/undescended testicle(s) >37 weeks
Genital Anomalies \ Epispadias
Genital Anomalies \ Hydrocoele
Genital Anomalies \ Hypospadias
Genital Anomalies \ Other - malformations of female genitalia
Genital Anomalies \ Other - malformations of male genitalia
Skeletal & Limb Anomalies \ Adactyly (absent fingers/toes)
Skeletal & Limb Anomalies \ Bowed/curved long bone(s)
Skeletal & Limb Anomalies \ Club foot (talipes equinovarus) - bilateral
Skeletal & Limb Anomalies \ Club foot (talipes equinovarus) - unilateral
Skeletal & Limb Anomalies \ Congenital hip dislocation/dysplasia
Skeletal & Limb Anomalies \ Craniosynostosis
Skeletal & Limb Anomalies \ Ectrodactyly (lobster-claw/cleft hand)
Skeletal & Limb Anomalies \ Hypotonia, unspecified
Skeletal & Limb Anomalies \ Limb reduction defect - lower limb
Skeletal & Limb Anomalies \ Limb reduction defect - upper limb
Skeletal & Limb Anomalies \ Limb reduction defects of unspecified limb
Skeletal & Limb Anomalies \ Osteogenesis imperfecta
Skeletal & Limb Anomalies \ Polydactyly - feet
Skeletal & Limb Anomalies \ Polydactyly - hands
Skeletal & Limb Anomalies \ Skeletal dysplasia
Skeletal & Limb Anomalies \ Syndactyly - feet
Skeletal & Limb Anomalies \ Syndactyly - hands
Skeletal & Limb Anomalies \ Congenital malformations of the musculoskeletal system
Skeletal & Limb Anomalies \ Other - malformations of the spine & bony thorax (not including spina bifida)
Skeletal & Limb Anomalies \ Other - malformations of the limb(s)
Other Anomalies/Patterns/Syndromes \ Congenital constriction bands/amniotic bands
Other Anomalies/Patterns/Syndromes \ Noonan syndrome/Rasopathies
Other Anomalies/Patterns/Syndromes \ Pierre Robin Sequence
Other Anomalies/Patterns/Syndromes \ Potter's syndrome/sequence
Other Anomalies/Patterns/Syndromes \ Other - genetic syndrome
Lymphatic Anomalies & Hydrops \ Cystic hygroma
Lymphatic Anomalies & Hydrops \ Fetal ascites
Lymphatic Anomalies & Hydrops \ Hydrops fetalis
Lymphatic Anomalies & Hydrops \ Increased nuchal translucency (>= 3.5 mm)
Lymphatic Anomalies & Hydrops \ Pleural effusion(s) (hydrothorax)
Chromosomal Anomalies \ 22Q11.2 deletion syndrome/DiGeorge syndrome
Chromosomal Anomalies \ 47, XYY
Chromosomal Anomalies \ Down syndrome/Trisomy 21
Chromosomal Anomalies \ Edwards syndrome/Trisomy 18
Chromosomal Anomalies \ Klinefelter syndrome (47, XXY)
Chromosomal Anomalies \ Patau syndrome/Trisomy 13
Chromosomal Anomalies \ Triple X syndrome (47, XXX)
Chromosomal Anomalies \ Triploidy/polyploidy
Chromosomal Anomalies \ Turner syndrome (45, X)
Chromosomal Anomalies \ Chromosome abnormality - other
Skin/Hair/Nails \ Congenital Ichthyosis
Skin/Hair/Nails \ Cutis Aplasia
Skin/Hair/Nails \ Epidermolysis Bullosa
Skin/Hair/Nails \ Other - congenital malformations of skin
Skin/Hair/Nails \ Other - congenital malformations of hair
Skin/Hair/Nails \ Other - congenital malformations of nails
Twins \ Acardiac Twin (TRAP Sequence)
Twins \ Selective Intrauterine Growth Restriction (sIUGR)
Twins \ Twin anemia polycythemia (TAPS)
Twins \ Twin-twin transfusion syndrome (TTTS)
Twins \ Other - malformation(s) of twins
Other/Unknown \ Other Congenital Malformations, Not Elsewhere Classified
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D0025ICD
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Newborn Congenital Anomalies Confirmed
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Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
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Data Definition:
Identify all confirmed/diagnosed congenital anomalies; include treated and untreated.
Pick List Value:
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Absent cavum septum pellucidum (CSP)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Absent cerebellar vermis
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Acrania or Anencephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Arachnoid cyst(s)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Arnold Chiari Malformation
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Aqueductal stenosis
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Corpus Callosum - Agenesis (ACC)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Corpus Callosum - Hypoplasia
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Dandy walker malformation/ variant (DWM)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Encephalocele
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Enlarged cisterna magna
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Holoprosencephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Hydrocephalus
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Hypotonia, unspecified
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Lissencephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Macrocephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Microcephaly
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Polymicrogyria
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Posterior fossa cyst
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Sacral agenesis
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Sacrococcygeal teratoma (SCT)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Seizures
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Spina Bifida with hydrocephalus
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Spina Bifida without hydrocephalus
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Ventriculomegaly - Mild-Moderate (11-14.9 mm)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Ventriculomegaly - Severe (>15 mm)
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Other - malformations of the nervous system
Central Nervous System (CNS) Anomalies & Neural Tube Defects (NTD) \ Other - malformations of the brain
Eye Anomalies \ Anophthalmos
Eye Anomalies \ Congenital cataract
Eye Anomalies \ Congenital glaucoma
Eye Anomalies \ Microphthalmos
Eye Anomalies \ Other - malformations of eye
Ear, Face and Neck Anomalies \ Choanal atresia
Ear, Face and Neck Anomalies \ Ears - Anotia
Ear, Face and Neck Anomalies \ Ears - Microtia
Ear, Face and Neck Anomalies \ Macroglossia
Ear, Face and Neck Anomalies \ Micrognathia
Ear, Face and Neck Anomalies \ Nose - Absent
Ear, Face and Neck Anomalies \ Nose - Hypoplastic
Ear, Face and Neck Anomalies \ Retrognathia
Ear, Face and Neck Anomalies \ Other - malformations of ear
Ear, Face and Neck Anomalies \ Other - malformations of the face and neck
Oro-facial Clefts \ Cleft lip
Oro-facial Clefts \ Cleft lip with cleft palate
Oro-facial Clefts \ Cleft palate
Oro-facial Clefts \ Pierre Robin Sequence
Thorax Anomalies \ Bronchopulmonary sequestration (BPS)
Thorax Anomalies \ Congenital high airway obstruction (CHAOS)
Thorax Anomalies \ Cystic adenomatous malformation of lung (CCAM)
Thorax Anomalies \ Diaphragmatic hernia (CDH)
Thorax Anomalies \ Other - congenital malformations of lung
Thorax Anomalies \ Other - malformations of the diaphragm
Cardiovascular Anomalies \ Aortic arch - Double
Cardiovascular Anomalies \ Aortic arch - Interrupted
Cardiovascular Anomalies \ Aortic arch - Right
Cardiovascular Anomalies \ Aortic atresia/Hypoplastic aortic arch
Cardiovascular Anomalies \ Aortic valve stenosis
Cardiovascular Anomalies \ Arrhythmia
Cardiovascular Anomalies \ Atrial isomerism (heterotaxy) - Left
Cardiovascular Anomalies \ Atrial isomerism (heterotaxy) - Right
Cardiovascular Anomalies \ Atrial septal defect (ASD)
Cardiovascular Anomalies \ Atrioventricular septal defect (AVSD)
Cardiovascular Anomalies \ Cardiomegaly
Cardiovascular Anomalies \ Coarctation of aorta
Cardiovascular Anomalies \ Congenital heart block (complete and incomplete)
Cardiovascular Anomalies \ Dextrocardia
Cardiovascular Anomalies \ Discordant atrioventricular connection
Cardiovascular Anomalies \ Double inlet ventricle (Single ventricle)
Cardiovascular Anomalies \ Double outlet right ventricle (DORV)
Cardiovascular Anomalies \ Ebstein anomaly
Cardiovascular Anomalies \ Hypoplastic left heart (HLHS)
Cardiovascular Anomalies \ Hypoplastic right heart (HRHS)
Cardiovascular Anomalies \ Mitral valve atresia
Cardiovascular Anomalies \ Mitral valve insufficiency
Cardiovascular Anomalies \ Mitral valve stenosis
Cardiovascular Anomalies \ Patent ductus arteriosus (PDA) - >37 weeks
Cardiovascular Anomalies \ Patent/Persistent foramen ovale (PFO)/Premature closure of atrial septum
Cardiovascular Anomalies \ Pericardial effusion
Cardiovascular Anomalies \ Pulmonary valve atresia
Cardiovascular Anomalies \ Pulmonary valve dysplasia
Cardiovascular Anomalies \ Pulmonary valve stenosis
Cardiovascular Anomalies \ Situs inversus (cardiac and abdominal)
Cardiovascular Anomalies \ Tetralogy of Fallot (TOF)
Cardiovascular Anomalies \ Total anomalous pulmonary venous connection (TAPVC)/Partial anomalous pulmonary venous connection (PAPVC)
Cardiovascular Anomalies \ Transposition of great vessels (TGV)
Cardiovascular Anomalies \ Tricuspid atresia/stenosis
Cardiovascular Anomalies \ Tricuspid regurgitation
Cardiovascular Anomalies \ Tricuspid valve dysplasia
Cardiovascular Anomalies \ Truncus arteriosus (common arterial truncus)
Cardiovascular Anomalies \ Vascular ring
Cardiovascular Anomalies \ Vena cava, bilateral superior (SVC)
Cardiovascular Anomalies \ Vena cava, interrupted inferior (IVC)
Cardiovascular Anomalies \ Vena cava, persistent left superior (SVC)
Cardiovascular Anomalies \ Ventricular disproportion (RV/LV discrepancy)
Cardiovascular Anomalies \ Ventricular septal defect (VSD)
Cardiovascular Anomalies \ Other cardiac malformations
Abdominal Wall Defects \ Gastroschisis
Abdominal Wall Defects \ Omphalocele (exomphalos)
Abdominal Wall Defects \ Other - congenital malformations of abdominal wall
Gastrointestinal & Abdominal Anomalies \ Abnormal stomach (including small/absent stomach)
Gastrointestinal & Abdominal Anomalies \ Biliary atresia (atresia of bile ducts)
Gastrointestinal & Abdominal Anomalies \ Bowel obstruction
Gastrointestinal & Abdominal Anomalies \ Duodenal atresia/stenosis
Gastrointestinal & Abdominal Anomalies \ Esophageal atresia (without fistula)
Gastrointestinal & Abdominal Anomalies \ Esophageal atresia with tracheo-esophageal fistula (TEF)
Gastrointestinal & Abdominal Anomalies \ Tracheoesophageal fistula (TEF) without esophageal atresia
Gastrointestinal & Abdominal Anomalies \ Hirschsprung disease
Gastrointestinal & Abdominal Anomalies \ Imperforate anus (congenital absence, atresia, stenosis of anus)
Gastrointestinal & Abdominal Anomalies \ Large intestine atresia/stenosis
Gastrointestinal & Abdominal Anomalies \ Pyloric stenosis
Gastrointestinal & Abdominal Anomalies \ Rectal atresia/stenosis with/without fistula
Gastrointestinal & Abdominal Anomalies \ Small bowel, abnormal
Gastrointestinal & Abdominal Anomalies \ Small intestine atresia/stenosis (excluding duodenum)
Gastrointestinal & Abdominal Anomalies \ Umbilical hernia
Gastrointestinal & Abdominal Anomalies \ Other - malformations of gastrointestinal system
Urinary Anomalies \ Bladder/cloacal exstrophy
Urinary Anomalies \ Congenital hydronephrosis
Urinary Anomalies \ Cystic kidneys - other
Urinary Anomalies \ Duplex kidney/collecting system
Urinary Anomalies \ Echogenic kidney(s)
Urinary Anomalies \ Ectopic/pelvic kidney
Urinary Anomalies \ Lower urinary tract obstruction
Urinary Anomalies \ Megacystis
Urinary Anomalies \ Megaureter
Urinary Anomalies \ Multicystic dysplastic kidney(s)
Urinary Anomalies \ Polycystic kidney, autosomal dominant
Urinary Anomalies \ Polycystic kidney, autosomal recessive
Urinary Anomalies \ Posterior urethral valves (PUV)
Urinary Anomalies \ Prune belly
Urinary Anomalies \ Renal agenesis - bilateral
Urinary Anomalies \ Renal agenesis - unilateral
Urinary Anomalies \ Renal cyst
Urinary Anomalies \ Renal Dysplasia
Urinary Anomalies \ Ureterocoele
Urinary Anomalies \ Other - malformations of the urinary system
Genital Anomalies \ Ambiguous genitalia/Indeterminate sex
Genital Anomalies \ Cryptorchidism/undescended testicle(s) >37 weeks
Genital Anomalies \ Epispadias
Genital Anomalies \ Hydrocoele
Genital Anomalies \ Hypospadias
Genital Anomalies \ Other - malformations of female genitalia
Genital Anomalies \ Other - malformations of male genitalia
Skeletal & Limb Anomalies \ Adactyly (absent fingers/toes)
Skeletal & Limb Anomalies \ Bowed/curved long bone(s)
Skeletal & Limb Anomalies \ Club foot (talipes equinovarus) - bilateral
Skeletal & Limb Anomalies \ Club foot (talipes equinovarus) - unilateral
Skeletal & Limb Anomalies \ Congenital hip dislocation/dysplasia
Skeletal & Limb Anomalies \ Craniosynostosis
Skeletal & Limb Anomalies \ Ectrodactyly (lobster-claw/cleft hand)
Skeletal & Limb Anomalies \ Hypotonia, unspecified
Skeletal & Limb Anomalies \ Limb reduction defect - lower limb
Skeletal & Limb Anomalies \ Limb reduction defect - upper limb
Skeletal & Limb Anomalies \ Limb reduction defects of unspecified limb
Skeletal & Limb Anomalies \ Osteogenesis imperfecta
Skeletal & Limb Anomalies \ Polydactyly - feet
Skeletal & Limb Anomalies \ Polydactyly - hands
Skeletal & Limb Anomalies \ Skeletal dysplasia
Skeletal & Limb Anomalies \ Syndactyly - feet
Skeletal & Limb Anomalies \ Syndactyly - hands
Skeletal & Limb Anomalies \ Congenital malformations of the musculoskeletal system
Skeletal & Limb Anomalies \ Other - malformations of the spine & bony thorax (not including spina bifida)
Skeletal & Limb Anomalies \ Other - malformations of the limb(s)
Other Anomalies/Patterns/Syndromes \ Congenital constriction bands/amniotic bands
Other Anomalies/Patterns/Syndromes \ Noonan syndrome/Rasopathies
Other Anomalies/Patterns/Syndromes \ Pierre Robin Sequence
Other Anomalies/Patterns/Syndromes \ Potter's syndrome/sequence
Other Anomalies/Patterns/Syndromes \ Other - genetic syndrome
Lymphatic Anomalies & Hydrops \ Cystic hygroma
Lymphatic Anomalies & Hydrops \ Fetal ascites
Lymphatic Anomalies & Hydrops \ Hydrops fetalis
Lymphatic Anomalies & Hydrops \ Increased nuchal translucency (>= 3.5 mm)
Lymphatic Anomalies & Hydrops \ Pleural effusion(s) (hydrothorax)
Chromosomal Anomalies \ 22Q11.2 deletion syndrome/DiGeorge syndrome
Chromosomal Anomalies \ 47, XYY
Chromosomal Anomalies \ Down syndrome/Trisomy 21
Chromosomal Anomalies \ Edwards syndrome/Trisomy 18
Chromosomal Anomalies \ Klinefelter syndrome (47, XXY)
Chromosomal Anomalies \ Patau syndrome/Trisomy 13
Chromosomal Anomalies \ Triple X syndrome (47, XXX)
Chromosomal Anomalies \ Triploidy/polyploidy
Chromosomal Anomalies \ Turner syndrome (45, X)
Chromosomal Anomalies \ Chromosome abnormality - other
Skin/Hair/Nails \ Congenital Ichthyosis
Skin/Hair/Nails \ Cutis Aplasia
Skin/Hair/Nails \ Epidermolysis Bullosa
Skin/Hair/Nails \ Other - congenital malformations of skin
Skin/Hair/Nails \ Other - congenital malformations of hair
Skin/Hair/Nails \ Other - congenital malformations of nails
Twins \ Acardiac Twin (TRAP Sequence)
Twins \ Selective Intrauterine Growth Restriction (sIUGR)
Twins \ Twin anemia polycythemia (TAPS)
Twins \ Twin-twin transfusion syndrome (TTTS)
Twins \ Other - malformation(s) of twins
Other/Unknown \ Other Congenital Malformations, Not Elsewhere Classified
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D0075
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Postnatal PRBC Transfusion Date
|
Newborn Screening Ontario (NSO), Neonatal Intensive Care Unit (NICU)
|
This variable is available for release but with restriction or approval from appropriate stakeholder.
Data Definition:
Enter the date infant received one or more transfusion of packed red blood cells in your unit. If multiple transfusions occurred over different days, enter the date of the latest transfusion.
|
D0075T
|
Postnatal PRBC Transfusion Time
|
Neonatal Intensive Care Unit (NICU)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Enter the time infant received one or more transfusions of packed red blood cells in your unit. If multiple transfusions occurred, enter the time of the latest transfusion.
|
D0104
|
ROP Screening
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Select "yes" if one or more Retinopathy of Prematurity (ROP) screenings has been performed in your hospital. Select "no" if not performed.
|
D0105
|
Meets RSV prophylaxis criteria
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Select "yes" if infant meets Respiratory Syncytial Virus (RSV) prophylaxis criteria (see Ministry of Health definitions of criteria). Select "no" if infant does not.
|
D0116
|
Neonatal Transfer Hospital From
|
Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Select the name of the facility (outside your hospital) where the infant was transferred from.
|
D0137
|
NICU Admit Date
|
Neonatal Intensive Care Unit (NICU)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Date of admission to your unit. This may be different than date of birth for late admissions or out-born infants.
|
D0138
|
NICU Admit Time
|
Neonatal Intensive Care Unit (NICU)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Enter time of admission to your unit.
|
D0139
|
NICU Discharge Date
|
Neonatal Intensive Care Unit (NICU)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Infant’s date of discharge/transfer from your unit.
|
D0140
|
NICU Discharge Time
|
Neonatal Intensive Care Unit (NICU)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Infant's time of discharge/transfer from your unit.
|
D0144
|
Neonatal Growth and Development Follow-up
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Does the infant meet your hospital's criteria to be referred to a neonatal follow-up clinic?
|
D0151
|
Head Circumference on Discharge from NICU
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Enter infant's head circumference in centimeters on discharge from your unit to home, other hospital, etc.
|
D0151UN
|
Head Circumference on Discharge from NICU Is Unknown
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Head Circumference on Discharge from NICU Is Unknown
|
D0152
|
Neonatal Health Conditions
|
Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Indicate the disease process(es) or condition(s) diagnosed in your unit.
Pick List Value:
Neonatal abstinence syndrome (NAS)
Patent Ductus Arteriosus \ PDA present not treated
Patent Ductus Arteriosus \ PDA treated pharmacologically
Patent Ductus Arteriosus \ PDA treated with ligation
Pneumothorax \ Pneumothorax not treated
Pneumothorax \ Pneumothorax treated with Chest Tube
Pneumothorax \ Pneumothorax treated with Needle Paracentesis
Pneumothorax \ Pneumothorax treated with 100% Oxygen
Hypoxic Ischemic Encephalopathy (HIE) \ Stage 1
Hypoxic Ischemic Encephalopathy (HIE) \ Stage 2
Hypoxic Ischemic Encephalopathy (HIE) \ Stage 3
Hypoxic Ischemic Encephalopathy (HIE) \ Stage Unknown
Seizures \ Suspected seizures not treated
Seizures \ Suspected seizures treated pharmacologically
Seizures \ Suspected seizures, treatment unknown
Seizures \ Confirmed seizures not treated
Seizures \ Confirmed seizures treated pharmacologically
Seizures \ Confirmed seizures, treatment unknown
Respiratory \ Aspiration of meconium (Meconium Aspiration Syndrome=MAS)
Respiratory \ Aspiration of milk and regurgitated food
Respiratory \ Bronchopulmonary Disease - Mild
Respiratory \ Bronchopulmonary Disease - Moderate/Severe
Respiratory \ Pneumomediastinum
Respiratory \ Pneumopericardium
Respiratory \ Pulmonary edema
Respiratory \ Pulmonary haemorrhage
Respiratory \ Pulmonary Interstitial Emphysema (PIE)
Respiratory \ Respiratory distress syndrome
Respiratory \ Respiratory distress, unspecified (not RDS)
Cardiovascular Conditions \ Anemia
Cardiovascular Conditions \ Arrythmia
Cardiovascular Conditions \ Cardiomyopathy
Cardiovascular Conditions \ Coagulopathy but not DIC
Cardiovascular Conditions \ Coagulopathy due to Disseminated intravascular coagulation
Cardiovascular Conditions \ Fetal blood loss, other
Cardiovascular Conditions \ Hemorrhage into co-twin (Twin to Twin transfusion)
Cardiovascular Conditions \ Hemorrhage into maternal circulation
Cardiovascular Conditions \ Hemorrhagic disease due to cause other than Vitamin K Deficiency
Cardiovascular Conditions \ Hemorrhagic disease due to Vitamin K Deficiency
Cardiovascular Conditions \ Hypertension (BP)
Cardiovascular Conditions \ Hypotension (BP)
Cardiovascular Conditions \ Persistent pulmonary hypertension (PPHN)
Cardiovascular Conditions \ Portal vein thrombosis
Cardiovascular Conditions \ Thrombocytopenia
Gastrointestinal Conditions \ Acquired Stricture post NEC
Gastrointestinal Conditions \ Gastroesophageal reflux disease
Gastrointestinal Conditions \ Intestinal obstruction
Gastrointestinal Conditions \ Intestinal perforation-Spontaneous
Gastrointestinal Conditions \ Meconium ileus
Gastrointestinal Conditions \ NEC-suspected without pneumatosis
Gastrointestinal Conditions \ NEC Stage II-confirmed with pneumatosis
Gastrointestinal Conditions \ NEC Stage III-confirmed with pneumatosis & perforation
Sepsis \ Positive Blood Culture
Sepsis \ Suspected Sepsis (culture negative)
Sepsis \ Culture positive lower respiratory tract infection
Sepsis \ Culture positive upper respiratory tract infection
Sepsis \ Culture positive skin/soft tissue infection
Sepsis \ Culture positive urinary infections
Sepsis \ Congenital CMV infection
Sepsis \ Congenital herpes viral (herpes simplex) infection
Sepsis \ Congenital rubella syndrome
Sepsis \ Congenital toxoplasmosis
Sepsis \ Positive CSF culture (meningitis)
Other Health Conditions \ Dehydration
Other Health Conditions \ Fever
Other Health Conditions \ Hemolytic disease due to ABO incompatibility
Other Health Conditions \ Hemolytic disease due to Rh incompatibility
Other Health Conditions \ Hemolytic diseases of fetus and newborn, other
Other Health Conditions \ Hydrocele
Other Health Conditions \ Hydrops fetalis due to isoimmunization
Other Health Conditions \ Hydrops fetalis due to other and unspecified haemolytic disease
Other Health Conditions \ Hyperglycemia (Gluc)
Other Health Conditions \ Hyperkalemia (K)
Other Health Conditions \ Hypernatremia (Na)
Other Health Conditions \ Hypertonia
Other Health Conditions \ Hypokalemia (K)
Other Health Conditions \ Hyponatremia (Na)
Other Health Conditions \ Hypothermia (Temp)
Other Health Conditions \ Hypotonia
Other Health Conditions \ Inguinal hernia
Other Health Conditions \ Intrauterine Growth Restriction (IUGR)
Other Health Conditions \ Neutropenia
Other Health Conditions \ Osteopenia of prematurity
Other Health Conditions \ Renal failure
Other Health Conditions \ Umbilical hernia
Other Health Conditions \ Vocal cord palsy
CNS \ CNS | IVH Blood in germinal matrix (grade 1)
CNS \ CNS | IVH Blood in ventricles (grade 2)
CNS \ CNS | IVH Ventricular enlargement (grade 3)
CNS \ CNS | IVH Intraparenchymal lesion (grade 4)
CNS \ CNS | PVL periventricular leukomalacia
Respiratory \ Transient tachypnea of newborn
|
D4294
|
Gestational Age on Admission (Days)
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
The GA on admission to NICU
|
FAN0005
|
Neonatal Surgery
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Any surgical intervention that took place during this stay in your unit.
Pick List Value:
Extracorporeal Membrane Oxygenation (ECMO)
Necrotizing Enterocolitis (NEC) surgery
Neurosurgery/Central Nervous System Surgery
Patent Ductus Arteriosus (PDA) ligation
|
FAN0029
|
Neonatal Transfer Hospital To
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
The name of the facility (outside your hospital) where the infant was transferred.
|
FAN0100
|
Venous cord blood base excess / deficit
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Indicate results of venous umbilical cord blood sampling indicating base excess or deficit reported by birth hospital.
|
FAN0101
|
Venous cord blood pH
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Indicate results of venous umbilical cord blood pH as reported by birth hospital. If results include '<' enter the next lowest value to one decimal place.
|
FAN0102
|
Arterial cord blood base excess / deficit
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Results of arterial umbilical cord blood sampling indicating base excess or deficit as reported by birth hospital.
|
FAN0103
|
Arterial Cord Blood pH
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Results of arterial umbilical cord blood pH as reported by birth hospital.
|
HBHC0052
|
Reason baby not discharged with mother
|
Healthy Babies Healthy Children (HBHC)
|
Data Definition:
Reason baby not discharged with mother
Pick List Value:
Baby transferred to Pediatrics
Adoption (includes gestational surrogacy)
Baby discharged without mother
Baby remains under postpartum care (e.g. Care by Parent Room)
Baby discharged from NICU or Pediatrics
|
N0005
|
Birth Location
|
Birth Child (BC), Healthy Babies Healthy Children (HBHC), Labour & Birth Mother (LBM), Newborn Screening Ontario (NSO), Neonatal Intensive Care Unit (NICU), NSO Diagnostic Evaluation Report Form (DERF), Postpartum Child (PPC), Postpartum Mother (PPM)
|
This variable is available for release but with restriction or approval from appropriate stakeholder.
Data Definition:
Location where the birth occurred (hospital, home, other, etc.).
|
N0006UNK
|
Time of Birth Unknown
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Time of Birth Unknown
|
N0008
|
APGAR1
|
Birth Child (BC), Healthy Babies Healthy Children (HBHC), Neonatal Intensive Care Unit (NICU)
|
Data Definition:
APGAR Score at 1 minute of age. Includes five components: Appearance (color), Pulse (heart rate), Grimace (reflexes), Activity (muscle tone), and Respiration (breathing), each given a score of 0, 1, or 2 (total score of 0-10).
|
N0009
|
APGAR5
|
Birth Child (BC), Healthy Babies Healthy Children (HBHC), Neonatal Intensive Care Unit (NICU)
|
Data Definition:
APGAR Score at 5 minutes of age. Includes five components: Appearance (color), Pulse (heart rate), Grimace (reflexes), Activity (muscle tone), and Respiration (breathing), each given a score of 0, 1, or 2 (total score of 0-10).
|
N0010
|
APGAR10
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU)
|
Data Definition:
APGAR Score at 10 minutes of age. A 10 minute Apgar is usually only done if the 5 minute score is less than 5. Includes five components: Appearance (color), Pulse (heart rate), Grimace (reflexes), Activity (muscle tone), and Respiration (breathing), each given a score of 0, 1, or 2 (total score of 0-10).
|
N0012
|
Birth Weight
|
Birth Child (BC), Healthy Babies Healthy Children (HBHC), Newborn Screening Ontario (NSO), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
This variable is available for release but with restriction or approval from appropriate stakeholder.
Data Definition:
Infant birth weight (grams).
|
N0012NO
|
Birth Weight Is Unknown
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Infant birth weight is not known.
|
N0014
|
Gestational Age at Birth (weeks+days; calculated using EDB and DOB)
|
Birth Child (BC), Healthy Babies Healthy Children (HBHC), Labour & Birth Mother (LBM), Newborn Screening Ontario (NSO), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
This variable is available for release but with restriction or approval from appropriate stakeholder.
Data Definition:
Infant's gestational age at the time of birth calculated using "Estimated Date of Birth" and "Newborn Date of Birth" data elements in weeks and days.
|
N0015
|
Feeding Methods (on day of discharge)
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Multi select. Include all methods of feeding the infant is receiving within 24 hours of discharge to home or other unit/facility
Pick List Value:
Continuous feeds (can be via gastrostomy or gavage)
Supplementation Device on Breast
Supplementation Device not on Breast i.e. finger feed, cup, other
|
N0021
|
Neonatal Birth Complications
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
All complications and/or conditions noted at the time of birth of the infant.
|
N0023
|
Newborn Resuscitation (first 30 minutes of life only)
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU)
|
Data Definition:
All methods of resuscitation provided at the delivery within the first 30 min of life only.
Pick List Value:
CPAP + Room Air (21% oxygen)
PPV + Room Air (21% oxygen)
Laryngeal mask airway (LMA)
Intubation for tracheal suction
|
N0026
|
Newborn Hearing Screen Result
|
Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
The result of the Auditory Brainstem Response (ABR) or Distortion Product Otoacoustic Emission (DPOAE) newborn hearing screen test done during the hospital stay
|
N0027
|
Newborn Drug Screen
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Indicate whether newborn drug screening done and if so, select type
|
N0028
|
Newborn Drug Screen Results
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Indicate result of newborn drug screening
|
N0042
|
Neonatal Therapies/Interventions
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Neonatal therapies or interventions include any treatment or procedure provided to an infant including medications and respiratory support, during this admission to your unit.
Pick List Value:
Blood Glucose Treatments \ Diazoxide
Blood Glucose Treatments \ Glucagon
Blood Products in Hospital \ Albumin
Blood Products in Hospital \ Cryoprecipitate
Blood Glucose Treatments \ Insulin
Blood Glucose Treatments \ IV dextrose due to hypoglycemia
Blood Products in Hospital \ Fresh Frozen Plasma
Blood Products in Hospital \ Immunoglobulin
Blood Products in Hospital \ Other Blood products
Blood Glucose Treatments \ Supplemental feeds due to hypoglycemia
Intubation for surfactant only
Blood Products in Hospital \ Packed Red Blood Cells
Blood Products in Hospital \ Platelets
Blood Products in Hospital \ Whole Blood
Oral Immune Therapy (OIT)
Intravascular Devices in Hospital \ PAL
Intravascular Devices in Hospital \ PICC Line
Intravascular Devices in Hospital \ PIV
Pharmacologic Support in Hospital \ Antibiotics
Intravascular Devices in Hospital \ Surgical CVL
Intravascular Devices in Hospital \ UAC
Pre-medication for intubation
Pharmacologic Support in Hospital \ Anticonvulsants
Intravascular Devices in Hospital \ UVC
Pharmacologic Support in Hospital \ Antifungals
Pharmacologic Support in Hospital \ Antivirals
Pharmacologic Support in Hospital \ Caffeine
Pharmacologic Support in Hospital \ Corticosteroids
Pharmacologic Support in Hospital \ Inotropes
Pharmacologic Support in Hospital \ Morphine for NAS
Pharmacologic Support in Hospital \ Paralytic Agents
Pharmacologic Support in Hospital \ Surfactant
|
N0046-1
|
Non- invasive ventilation days
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Indicate the total number of calendar days the neonate received Non Invasive Ventilation, (e.g. NCPAP, SiPAP) in your NICU for this admission only in whole numbers. For example, if the neonate received non-invasive ventilation for four hours on Day 1 indicate Non-Invasive Ventilation Days = 1. If the neonate received non-invasive ventilation for four hours on Day 1 and four hours on Day 2, indicate Non-Invasive Ventilation Days = 2.
|
N0047
|
Invasive Ventilation Days
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Indicate the total number of calendar days the neonate received Invasive Ventilation in your NICU for this admission only in whole numbers. For example, if the neonate received invasive ventilation for four hours on Day 1 indicate Invasive Ventilation Days = 1. If the neonate received invasive ventilation for four hours on Day 1 and four hours on Day 2, indicate Invasive Ventilation Days = 2.
|
N0048
|
Oxygen Therapy Days
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Indicate the total number of calendar days the neonate received respiratory support that involved oxygen therapy greater than 21% (room air) in your NICU, for this admission. Represented in whole numbers. For example, if the neonate received oxygen therapy for four hours on Day 1 indicate Oxygen Therapy Days = 1. If the neonate received oxygen therapy for four hours on Day 1 and four hours on Day 2, indicate Oxygen Therapy Days = 2.
|
N0050
|
Gestational age at discharge
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Calculated gestational age of premature infant at discharge from hospital
|
N0050-1
|
Days of Age at Discharge
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Age of newborn in days upon discharge from NICU
|
N0052
|
Discharge Weight
|
Healthy Babies Healthy Children (HBHC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Indicate baby weight at discharge (grams). Enter 0 if weight is unknown.
|
N0052UN
|
Discharge Weight Is Unknown
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Discharge Weight (NICU) Is Unknown
|
N0059
|
Autopsy Consent
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Indicate if parents or guardian have consented to autopsy in the case of neonatal death.
|
N0060
|
Neonatal/Infant Death
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Indication of whether or not neonatal death occurred. While neonatal death technically only includes the first 28 days of life, includes infant death that occurs after that period, while in your care.
Pick List Value:
Yes-With Termination of Pregnancy
|
N0065
|
Newborn Discharged or Transferred To
|
Postpartum Child (PPC)
|
Data Definition:
To track neonatal transfers and discharges
Pick List Value:
Transfer to NICU, other hospital
Transfer to NICU, same hospital
Transfer to Paediatric unit, same hospital
Transfer to other unit, same hospital
Transfer to other Hospital
Child and Family Services Apprehension
|
N0066
|
Neonatal Discharged or Transfer to (NICU)
|
Neonatal Intensive Care Unit (NICU)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Location infant was transferred or Discharged to from your unit
Pick List Value:
Transfer to Mother/Baby unit, same hospital
Transfer to Paediatric unit, same hospital
Child and Family Services Apprehension
Transfer to clinic, same hospital
Transfer to Emergency department, same hospital
Transfer to Labour & Birth unit, same hospital
Transfer to Level 2, same hospital
Transfer to Level 3, same hospital
Transfer to operating room, same hospital
Transfer to Palliative Care
Transfer to PICU/PCCU, same hospital
Transfer to same hospital, other
|
N0067
|
Neonate Transferred From
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Provide the location where the infant was admitted from to your unit.
Pick List Value:
Labour and birth unit, same hospital
Mother baby unit (Postpartum), same hospital
Emergency Department, same hospital
Operating room, same hospital
Paediatric unit, same hospital
Non-medical facility (e.g., mall, taxi, ambulance)
|
N0068
|
Postpartum Breastfeeding Education & Support
|
Neonatal Intensive Care Unit (NICU), Postpartum Mother (PPM)
|
Data Definition:
Indicates whether breastfeeding education and/or support was provided from the time of birth to discharge from hospital OR for midwifery clients, from time of birth to discharge from midwifery care.”.
*Note: for NICU encounter this applies only to the duration of the NICU admission. For the PPM encounter this applies only to the duration from birth to discharge from care.
|
N0069
|
Type of postpartum breastfeeding education and support provided
|
Neonatal Intensive Care Unit (NICU), Postpartum Mother (PPM)
|
Data Definition:
Most women need information and/or support to establish breastfeeding after birth and prior to discharge from hospital OR for midwifery clients, from time of birth to discharge from midwifery care. Select the type(s) of support provided.
Pick List Value:
Provided information/support \ Hand expression
Provided information/support \ Pumping
Provided information/support \ Skin-to-skin
Provided information/support \ Signs of effective latch
Provided information/support \ Continuation of breastfeeding after discharge
Provided information/support \ Sustained breastfeeding if separated from baby
Provided information/support \ Community breastfeeding resources
Provided assistance with breastfeeding within six hours of birth after initial feeding
Consult with a lactation consultant
Referred mother to breastfeeding support services for follow-up
|
N0070
|
Reasons why breastfeeding education and support was not provided
|
Neonatal Intensive Care Unit (NICU), Postpartum Mother (PPM)
|
Data Definition:
Select reason why breastfeeding education and support was not provided from the time of birth and prior to discharge from the hospital
Pick List Value:
Early discharge home within 2 hours
|
N0122
|
Percent weight loss/gain - Infant
|
Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Calculation of newborn percentage of weight loss/gain at the time of discharge
|
N0123
|
Transport Personnel (Discharge)
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Select all health care providers who were responsible for and carried out the transport of an infant from your unit to another facility.
Pick List Value:
Transport team (1 of 4 Provincial Teams)
Registered Respiratory Therapist
Clinical Nurse Specialist/Nurse Practitioner
|
N0138
|
Neonatal/Infant Death Date
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Day/month/year of neonatal death.
|
N0139
|
Neonatal/Infant Death Time
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Time (24 hour clock) of neonatal death.
|
N0141
|
Age at Neonatal Death
|
Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Calculated Age at Neonatal Death
|
N0146
|
Neonatal Transfer to NICU
|
Birth Child (BC)
|
This data element is available for request but because it's a quasi-identifier it can make the individual more unique in the population and hence easier to re-identify especially in combination with other variables. Categories/generalization and/or suppression might be necessary.
Data Definition:
Identifies if infant has been transferred to the NICU within the first hour of life.
Pick List Value:
Transfer to NICU other hospital/organization
Transfer to NICU same hospital
|
N0204
|
Bilirubin Measured within 72 hours of Birth
|
Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Indicate if Bilirubin was measured within 72 hours of birth. If TCB and TSB were used, select both. If baby is discharged from hospital and returns for testing within 72 hours, select “No – Newborn Transferred Out/Discharged”
Pick List Value:
Yes - Transcutaneous bilirubin (TCB)
Yes - Total Serum Bilirubin (TSB)
No - Newborn Transferred Out/Discharged
|
N0205
|
Hyperbilirubinemia Requiring Treatment
|
Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Indicate whether hyperbilirubinemia required treatment
|
N0206
|
Hyperbilirubinemia treatment
|
Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Multi select. Indicate all methods of treatment the infant received for hyperbilirubinemia in your unit.
|
N0207
|
Highest Serum Bilirubin >340 µmol/L
|
Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Indicate whether highest serum bilirubin > 340 µmol/L
|
N0208
|
Highest Serum Bilirubin >425 µmol/L
|
Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
|
Data Definition:
Indicate whether highest serum bilirubin > 425 µmol/L
|
N0209
|
NICU Type
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Defined level of care under PCMCH designation (auto populates)
|
N0210
|
Admission Head Circumference (NICU)
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Enter infant's measured head circumfernce in centimeters on admission to your unit. This can be the first known head circumference in your unit.
|
N0210UN
|
Admission Head Circumference (NICU) Is Unknown
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Admission Head Circumference (NICU) Is Unknown
|
N0211
|
Admission Weight (NICU)
|
Neonatal Intensive Care Unit (NICU)
|
Data Definition:
Enter the body weight in grams of infant on admission to your unit no matter where infant was admitted from. If no weight is taken in the 24 hours following admission enter estimated weight on which treatment is based.
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N0211-1
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Days of Age on Admission (NICU)
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Age of the newborn in days upon admission to NICU
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N0211UN
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Admission Weight (NICU) Is Unknown
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Admission Weight (NICU) Is Unknown
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N0212
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Transport Personnel In (Admission)
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Select all health care providers who were responsible for and carried out the transport of an infant to your unit from another facility.
Pick List Value:
Transport team (1 of 4 Provincial Teams)
Registered Respiratory Therapist
Clinical Nurse Specialist/Nurse Practitioner
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N0213
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Neonatal Resuscitation - initial gas used in first 30 minutes of life
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Birth Child (BC), Neonatal Intensive Care Unit (NICU)
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Data Definition:
The percentage of oxygen (21%-100%) used INITIALLY for resuscitation in the first 30 min of life only.
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N0214
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Neonatal Resuscitation - maximum % of O2 used in first 30 minutes of life
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Birth Child (BC), Neonatal Intensive Care Unit (NICU)
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Data Definition:
Enter the maximum concentration of oxygen (>21%) used during resuscitation of an infant in the first 30 minutes of life. Values should be 22-100%. An O2 value of 21% is considered room air.
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N0214UNK
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Maximum of Oxygen provided during neonatal resuscitation - Unknown Value
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Select if it is unknown what the maximum amount of oxygen the infant was in during resuscitation in the first 30 minutes of life.
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N0215
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Neonatal Pain Management
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Multi select. Include all methods of pain management provided to infant in your unit.
Pick List Value:
Opioid analgesic use \ Fentanyl
Opioid analgesic use \ Morphine
Oral analgesics including acetaminophen
Sedative use \ Benzodiazepines
Sedative use \ Chloral Hydrate
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N0216
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Highest Mode of Respiratory Support
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Select one value (highest mode) by this order
• Invasive High Frequency Ventilation [1-highest]
• Intermittent Positive Pressure Ventilation [2]
• Non-Invasive Ventilation [3]
• Oxygen [4]
• Other [5-lowest]
• None
• Unknown
Pick List Value:
Invasive High Frequency Ventilation
Intermittent Positive Pressure Ventilation
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N0217
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Respiratory Support in Hospital
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Select all methods of respiratory support provided during this admission in your unit.
Pick List Value:
Invasive High Frequency Ventilation
Invasive Positive Pressure Ventilation
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N0218
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Feeding Methods in Hospital
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Select all methods by which an infant was fed during their stay in your unit.
Pick List Value:
Continuous feeds (can be via gastrostomy or gavage)
Supplementation Device on Breast
Supplementation Device not on Breast i.e. finger feed, cup, other
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N0219
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Nutritional Support in Hospital
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Select the types of feeding that an infant recieved during their stay in your unit.
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N0220
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Reason for Breast Milk Substitute in Hospital
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Multi select. Provide all reasons infant received any feeding other than breast milk while in your unit.
Pick List Value:
Infant Medical \ Hypoglycemia
Infant Medical \ Inadequate Weight Gain
Infant Medical \ Inborn Errors of Metabolism
Infant Medical \ Significant weight loss in the presence of clinical indications
Infant Medical \ Other clinical indications
Maternal Medical \ Active herpes on breast
Maternal Medical \ Additional Health Concerns
Maternal Medical \ Contraindicated maternal medication
Maternal Medical \ HIV infection
Maternal Medical \ Severe maternal illness
Informed Parent Decision to use any Breast Milk Substitute
Insufficient maternal milk supply
Birth mother not involved in care
Not eligible for donor milk
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N0221
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ROP Eye Screening Type
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Choose the method used to assess for retinopathy of prematurity (ROP).
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N0222LFT
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ROP worst stage left eye
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Indicate the worst level of eye disease by stages 1 through 5.
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N0222RHT
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ROP worst stage right eye
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Indicate the worst level of eye disease by stages 1 through 5.
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N0223
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ROP Treatment
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Choose the method used to treat retinopathy of prematurity (ROP).
Pick List Value:
Left eye - Anti VEGF injections
Left eye - Other eye surgery
Right eye - Laser Therapy
Right eye - Anti VEGF injections
Right eye - Other eye surgery
Both eyes - Laser Therapy
Both eyes - Anti VEGF injections
Both eyes - Other eye surgery
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N0224
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RSV Prophylaxis Criteria
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
RSV Prophylaxis Criteria - See list from the Ministry of Health and Long Term Care (MOHLTC) criteria that describes which infants are eligible for Synagis Prohylaxis for Respiratroy Syncytial Virus (RSV). Select the appropriate criteria from the pick list.
Pick List Value:
Infant <=32 6/7 wks, age <= 6mo at start or during RSV season
Infant 33-35 6/7 wks, age <= 6mo in RSV season, remote (30min+ to NICU or 90min+ to HCP)
Infant 33-35 6/7 wks, age <= 6mo in RSV season, non-remote, RAT score 49-100
Confirmed bronchopulmonary dysplasia
Confirmed hemodynamically significant congenital heart disease
Special consideration with physician letter and medical justification
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N0225
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RSV Prophylaxis Administered
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Select "yes" if Syngagis has been administered in your unit. Select "no" if not administered.
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N0226
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Neuroimaging Screening Performed
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Select if any neuroimaging was performed during the infant's stay in your unit.
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N0227
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Neuroimaging Screening Results Left
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Results of head ultrasound or CT scan done in your unit for the left side of the brain.
Pick List Value:
Periventricular Leucomalacia (PVL)
Ventricular Enlargement Mild
Ventricular Enlargement Moderate
Ventricular Enlargement Severe
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N0228
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Neuroimaging Screening Results Right
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Results of head ultrasound or CT scan done in your unit for the right side of the brain.
Pick List Value:
Periventricular Leucomalacia (PVL)
Ventricular Enlargement Mild
Ventricular Enlargement Moderate
Ventricular Enlargement Severe
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N0229
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Feeding Type (on day of discharge)
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Multi select. Select all types of feeding within 24 hours of discharge to home or other unit/facility.
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N0231
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Discharge Interventions in Place on day of Discharge/Transfer
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Muti select. Select all interventions infant is receiving on discharge to home or another unit/hospital.
Pick List Value:
Gavage tube feeding (weighted or regular NG, NJ, etc.)
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N0232
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Admission Temperature
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Enter the body temperature in celcius of infant on admission to your unit no matter where infant was admitted from. Use axillary or rectal, but not skin probe temperature (temperature of the baby using the incubator/warmer). If unknown, enter as '0'.
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N0232UN
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Admission Temperature Is Unknown
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Admission Temperature Is Unknown
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N4354
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Consent for Use of Breast Milk Substitute
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Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
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Data Definition:
Indicate whether or not there is evidence that consent for use of breast milk substitute was obtained from the parent. Consent can be in verbal or written form.
Pick List Value:
Evidence that consent was obtained
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N4542
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Did NICU perform/assist with the resuscitation that was done in the first 30 mins of life?
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Birth Child (BC)
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Data Definition:
Indicates if the NICU team independently performed, or assisted the birthing team, with the initial resuscitation of the infant in the first 30 minutes of life. If the NICU team was not there or was there but did not participate, then select no.
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N4545
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Was glucose monitoring being done?
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Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
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Data Definition:
Indicates if blood glucose monitoring via bedside monitoring (point-of-care) and/or laboratory analysis was being done according to the Canadian Pediatric Society's guidelines.
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N4546
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Was Oral Dextrose/Gel given?
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Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
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Data Definition:
Indicates if oral dextrose/gel was given to the infant for the purposes of stabilizing blood sugars.
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N4548
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Blood Group and Type of Infant, ABO/Rh(D)
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Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
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Data Definition:
Indicates the ABO blood group and the presence (+) or absence (-) of the Rh factor of the newborn/infant's blood (results can be obtained from baby or cord).
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N4551
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Reason(s) for Neonatal Admission
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Indicates common and broad categories of reasons why the infant was admitted to the NICU.
Pick List Value:
Birth depression/Hypoxic-ischemic encephalopathy (HIE)
Boarder (infants of sick parents, CAS issues, etc.)
Neonatal abstinence syndrome (NAS)
Neurological (not including birth depression/HIE)
SGA/below minimum birth weight
Suspected/possible sepsis
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N4556
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Oxygen Therapy Minutes
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Length of time in hours and minutes the infant received oxygen therapy (greater than 21% or room air) within the NICU.
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N4557
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Non Invasive Ventilation Minutes
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Length of time in hours and minutes the infant received non-invasive ventilation within the NICU. This includes CPAP, bubble CPAP, BiPAP (biphasic positive airway pressure), SiPAP (sigh-positive airway pressure), NIPPV (Non Invasive Positive pressure ventilation), HFNC (High Flow nasal cannula), and SNIPPV (synchronized nasal intermittent positive pressure ventilation).
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N4558
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Invasive Ventilation Minutes
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Neonatal Intensive Care Unit (NICU)
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Data Definition:
Length of time in hours and minutes the infant received invasive ventilation within the NICU. This includes all forms of mechanical ventilation with endotracheal tube or tracheostomy tube (including high frequency ventilation - HFV), as well as NAVA (Neurally Adjusted Ventilatory Assist).
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N4565
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Reason For Neonatal Transfer
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Birth Child (BC), Neonatal Intensive Care Unit (NICU), Postpartum Child (PPC)
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Data Definition:
All reasons why the infant was transferred to the NICU.
Pick List Value:
Requires higher level of care
Keeping baby and mother together
Repatriation/Care closer to home
Transfer back to birth hospital
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N5157
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RSV mAb administered?
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NICU, Postpartum Child
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Data Definition:
Indicates if the infant RSV monoclonal antibody was administered.
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N5158
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Reason RSV mAb not given
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NICU, Postpartum Child
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Data Definition:
Reason that the infant RSV monoclonal antibody was not given.
Pick List Value:
Infant born out of season
Parents/guardian declined
Received prenatal RSV vaccine >2 weeks before birth and infant NOT high-risk
Not offered before discharge from care/missed opportunity
Out of hospital birth/Midwives not authorized to administer
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N5158OTH
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Reason RSV mAb not given, other
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NICU, Postpartum Child
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Data Definition:
Reason that the infant RSV monoclonal antibody was not given.
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N5160
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Date of RSV mAb administration
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NICU, Postpartum Child
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Data Definition:
The date when the infant RSV monoclonal antibody was administered.
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N5161
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Date of RSV mAb administration is Unknown
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NICU, Postpartum Child
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Data Definition:
Indicates the date of the infant RSV monoclonal antibody is not known.
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N5162
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Infant RSV product
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NICU, Postpartum Child
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Data Definition:
Product name of the infant RSV product that was given.
Pick List Value:
Beyfortus (No dosage specified)
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N5162OTH
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Infant RSV product, other
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NICU, Postpartum Child
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Data Definition:
Product name of the infant RSV product that was given.
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N5164
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Infant high-risk for RSV
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NICU, Postpartum Child
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Data Definition:
Please provide definition
Pick List Value:
Yes - Suspected or Confirmed Down Syndrome/Trisomy 21
Yes - Chronic lung disease of prematurity (CLD), including bronchopulmonary dysplasia/chronic lung disease
Yes - Hemodynamically significant congenital heart disease (CHD) and/or moderate to severe pulmonary hypertension
Yes - Cystic Fibrosis with respiratory involvement and/or growth delay
Yes - Severe immunodeficiency
Yes - Neuromuscular disease impairing clearing of respiratory secretions
Yes - Severe congenital airway anomalies impairing the clearing of respiratory secretions
Yes - Other Reason for second/subsequent dose, (immune status, risk of aspiration, hypotonic, etc.), specify
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N5164OTH
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Infant high-risk for RSV, Other
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NICU, Postpartum Child
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Data Definition:
Reason(s) the infant is identified as high-risk and would require a second season dose.
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RPT003
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NICU Admission Flag
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Birth Child (BC), Neonatal Intensive Care Unit (NICU)
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Data Definition:
NICU Admission Flag is calculated in the APP DB based on enconter data. Value is stored in the Application Birth Aggregated record and then promoted to Reporting DB.
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Y0020
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Arterial cord blood test status
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Birth Child (BC), Neonatal Intensive Care Unit (NICU)
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Data Definition:
Status of umbilical arterial cord blood test.
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Y0030
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Venous cord blood test status
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Birth Child (BC), Neonatal Intensive Care Unit (NICU)
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Data Definition:
Status of umbilical venous cord blood test.
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Y02091
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Birth Hospital
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Birth Child (BC), Healthy Babies Healthy Children (HBHC), Labour & Birth Mother (LBM), Newborn Screening Ontario (NSO), Neonatal Intensive Care Unit (NICU), NSO Diagnostic Evaluation Report Form (DERF), Postpartum Mother (PPM)
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This variable is available for release but with restriction or approval from appropriate stakeholder.
Data Definition:
The name of the hospital where the birth occurred if Birth Location =hospital. Includes all Ontario hospitals with and without birthing units and some out of province and out of country hospitals.
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